Woman’s 11-stone (154 lbs) legs may be lost

I don’t know if I could handle living with ‘Proteus Syndrome’ and take it in stride as this young woman has, could  you?  Here is her compelling story.

 

_42881723_mandy_lounge203 A woman is campaigning to raise awareness of a rare condition which has left her with 11 stone (70kg) legs.

Mandy Sellars, 32, from Lancashire, suffers from Proteus syndrome, a condition also thought to have affected the “Elephant Man”, Joseph Merrick.

Although she was born with abnormally large legs and feet – which continue to grow – her body is of average size.

Doctors may have to amputate in the future, but Ms Sellars says she wants to raise awareness before it happens.

Proteus Syndrome is only thought to affect about 120 people worldwide, which ensures Ms Sellars receives some stares in public.

I quite fancy having a go at snowboarding actually, maybe paragliding or white water rafting would be wonderful

Mandy Sellars

“I expect people to look – I think that’s quite inevitable because I would if I was in their position – but a smile can bring so much to one person,” she said.

She told the BBC of her relief at finally being diagnosed with the condition in May 2006, which allowed her to meet other sufferers.

“I wanted to belong,” said Ms Sellars.

“I wanted to find other people that had the condition, and to be able to relate to them and them to relate to me and know what it’s like to live with this condition and how different it is.”

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Mandy was born with oversized limbs

Proteus Syndrome is an extremely rare condition which involves atypical growth of the bones, skin, head and a variety of other symptoms.

The name comes from the Greek god Proteus who could change his form.

There is no known cure and if Ms Sellars limbs continue to grow – her feet are 16ins long while her legs are 35ins in diameter at the bottom and 28ins at the top – doctors say they will have to amputate.

“I have goals for when that does happen,” she added.

“Why not? It can be a different life. It could be a more adventurous life. Things I can’t do now I might be able to do then.

“I quite fancy having a go at snowboarding actually, maybe paragliding or white water rafting would be wonderful, it really would. So you never know – watch this space.”

CBS Newsman Walter Cronkite Remembered at New York City Funeral

Thursday, July 23, 2009
Fox News

 As I watched the news I realized how fortunate I was to have lived during Cronkite’s life as a journalist in every facet. 
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Mourners gathered Thursday to bid farewell to legendary “Evening News” anchor Walter Cronkite at his star-studded New York City funeral.

Cronkite’s casket was carried in to the private ceremony about 1:30 P.M. Thursday at St. Bartholomew’s Church in midtown Manhattan.

The service drew scores of Hollywood’s glitterati, as well as his loved ones, friends and colleagues. Cronkite died Friday at his Manhattan home at age 92.

I’m sure that by now everyone knows about his career and accomplishments but I wanted to express my own feelings as well.

As I watched the news I realized how fortunate I was to have lived during Cronkite’s life as a journalist in every facet. 

To me, he was a reporter who spoke his mind without fear of loosing his job due to any political influence.

Thursday as I listened I vividly recalled the day he had to report the assassination of president Kennedy he didn’t hold back his feelings, he wore his heart on his sleeve.

From 1952 until he retired he was known as the most trusted reporter in America.  He will truly be missed!!!!  ……flagranny2

 
“AND THAT’S THE WAY IT WAS”

Breaking News-CBS,Walter Cronkite News legend has passed away

Friday, July 17, 2009
SOURCE- Associated Press
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NEW YORK —  A CBS executive says retired CBS anchorman Walter Cronkite, “the most trusted man in America,” has died at his home in New York. He was 92.

CBS vice president Linda Mason says Cronkite died at 7:42 p.m. after a long illness, with his family by his side.

He was the face of CBS News from 1962 to 1981, when stories ranged from the John F. Kennedy assassination to Watergate and the Iranian hostage crisis.

More info to follow as it is published ….flagranny2

BREAKING NEWS: Former NFL Star Steve McNair Killed in Shooting

Saturday, July 04, 2009
foxnews_story

 

070409_mcnairNASHVILLE, Tenn. — DEVELOPING: Former NFL quarterback Steve McNair and a woman were found shot to death Saturday inside a residence in Nashville, police said.

Nashville police spokesman Don Aaron confirmed that authorities were called to a condominium and found McNair and a woman shot to death inside. Aaron said police don’t yet know the circumstances of the shooting.

“I don’t have any answers for you now as to what’s happened, who’s responsible,” he said.

Aaron said police tentatively have identified the woman but did not release her name.

To read the rest of this article  click here

Doctors Baffled: Girl, 16, Has Body of a Toddler, Still Can’t Speak

Thursday, June 25, 2009 foxnews_story

 

2_61_320_BrookePartyIt’s surprising how much we take for granted until we read a story like Brooke’s. How often do we say babies are a “Miracle”? Let’s take it a step further and not only use the word Miracle but include the words” Miracle and healthy”?

Normally you would expect your 16 year old daughter anxiously hoping she will be asked to the prom, get her drivers’s license or at least permit, etc. I know when we were expecting our daughters I can honestly say I didn’t give those words a second thought. I did think about it but mostly as a passing thought.  How blessed we are!!  …..flagranny2

Click here to see pictures of Brooke

To learn more about Brooke, watch “Child Frozen in Time” at 10 p.m. Sunday, Aug. 2 on TLC.